I still
remember seeing my baby brother for the first time. I was three years old and,
in the 1960’s, you couldn’t go into the hospital ward until you were twelve
years old. At the age of three, I was allowed to stand at the bottom of the
steps in the old hospital (a remodeled house) while the nurse held that
precious little bundle up for me to see.
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Me, at about 5, with my brother. |
In that day
and age, it was very common for older children to babysit the younger children
in the family. This was especially true on the farm, which was where I grew up.
So, at the age of 4 or 5, I started taking care of my little brother for a few
hours at a time while mom helped dad do chores outside.
As a young
child, I relished my role as caregiver. I felt important. I felt responsible. Sometimes that adult-level role left me feeling alone and afraid, but I always tried to hide it if I could.
As my
brother grew, it became apparent to my parents that he was not developing like
other children. After a long, painful journey (I accompanied my family on the appointments)
my parents got the word that my brother was disabled. Back in the day, they
used the “R” word to diagnose my brother and the doctor advised my parents to
institutionalize him.
My parents
didn’t need to think long about their decision. They would keep their son at
home, he would go to school, and he would live as normal a life as possible.
My typical
sibling relationship quickly became atypical. Normal as possible was anything but
“normal.”
Throughout life with my brother, my personal pain was great, and my desire
to “fix” everything even greater. I was consumed with guilt, anger, and resentment,
but those feelings were buried so deep, I wasn’t even aware of them.
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Check out my attitude! |
Over the next several weeks, I will be using this blog to go through a
process of moving from a past-focused way of thinking, to a future-focused
mindset.
This blog journey is designed to help my fellow siblings realize that whatever
your past or present relationship with your disabled sibling might be, it is
possible to let go of what isn’t working in your life and move forward.
Please join me!
www.siblingcoach.com
The following article, which was posted by a sib on the Facebook group, really hit home with me, even though my family life did not parallel the woman in the article. It’s a good read about experiences and feelings of many sibs.
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